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Joined 1 year ago
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Cake day: November 14th, 2023

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  • Thanks for the info. The Brighton test is actually what led us to start looking into EDS. I easily get 4 points with the pinkies and thumbs. I’m not sure on the knees and elbows, I go past straight but I didn’t know how to properly measure what angle I get to. I cannot even come close to touching my toes because my spine does not curve the way it is supposed to.

    I did not know about the antibiotic, that is good info to have. I did know people with EDS need to be particularly careful with stretches and yoga but had not really thought about physical therapy. Last time I was in PT for my spine I ripped my collar bone most of the way off of my sternum so that makes sense.

    Again, thank you for the info.



  • I suspect that I have Ehlers Danols. I have an appointment with a new doctor next month to look into a possible diagnosis. When my wife first found out about EDS and said she thought I might have it I was just like “whatever”, but then the more we looked into it the more my entire life made sense. I’m not saying I hope I have EDS but it would be really nice to actually have an explanation for the constant pain and unstable joints.